It’s been a log, long week, despite the fact that I had Monday off work (we went to visit Jan’s dad) and I’m unbelievably glad it’s over. For some reason I just couldn’t concentrate. Everything seemed to take three times as long as it should have, then we had a customer complain and spent 2 hours on Tuesday and Wednesday sorting that out. Yep, that’s one week I’m pleased to see the back off.
Baby Ellie’s funeral was yesterday. I wish so much that I could have been there to support her parents – well, her mum mostly, I’ve only met her dad once – but for obvious reasons that wasn’t possible. One of the disdvantages of living in Germany. I know they had lots of friends and family there for them though, and I hear she had a good send off. Quite a bit of money was put in the donation tin as well, and Ellie’s memorial page on Just Giving has already raised more than 1,500 pounds for the Tiny Lives charity! Not bad considering it was only created a little over a week ago. You can see the page here: http://www.justgiving.com/Naomi-Warburton Please pass the link on, even if you don’t feel you can donate to total strangers. They are trying to get the message out to as many people as possible and every little helps.
I must go and finish cooking tea now – we’re having fish and chips the healthy way (home-made and oven-cooked) and I really don’t think the potatoes are going to peel themselves!
On 5th February 2011 my friend Naomi gave birth to a baby girl at 35 weeks gestation.
Baby Ellie was suffering from a reare genetic disease, ARPKD – the recessive form of Polycystic Kidney Disease (ARPKD = autosomal recessive polycystic kidney disease). Despite the staff at the RVI (Royal Victoria Infirmary) doing everything they could, Ellie fell asleep in her mum’s arms on 7th February 2011.
Now Ellie’s mum and dad, and their friends and family, are determined to give something back to the hospital that gave so much to Ellie during her short time on Earth, while at the same time raising awareness of ARPKD. Naomi has set up a fund for Ellie on JustGiving, and people are spreading awareness through Twitter. They’ve even managed to get a few celebrities involved in tweeting (I believe that’s the technical term…). And a local newspaper has also got wind of Ellie’s cause and now want to write an article about her and the various charity events. What a little star! And now, along with everyone else who would have liked to get to know Ellie, I want to do my bit to get people involved. That’s where you come in!
Please could those of you who have Twitter “tweet” the following link: http://www.justgiving.com/Naomi-Warburton
Obviously none of you know the family, and if we all gave money to every cause out there we’d be broke within minutes, but even so if you think you could perhaps donate a little something that would be amazing! Even if it’s just a pound or two, every penny that the RVI tiny lives charity gets could make a huge difference to a premature or sick baby’s life. (If you do decide to donate, maybe mention that you came from my blog, just so Ellie’s family can keep some kind of overview of where the donations are coming from). The point of this post is really to raise awareness though, not to ask you for money. Which is why all I really want is for the tweeters (twitterers?) among you to at least pass on the link. I know Ellie’s mum will be beyond grateful! I’m not on twitter myself so I thought my blog was the best chance I had to pass on the message. Thank you all!