On 5th February 2011 my friend Naomi gave birth to a baby girl at 35 weeks gestation.
Baby Ellie was suffering from a reare genetic disease, ARPKD – the recessive form of Polycystic Kidney Disease (ARPKD = autosomal recessive polycystic kidney disease). Despite the staff at the RVI (Royal Victoria Infirmary) doing everything they could, Ellie fell asleep in her mum’s arms on 7th February 2011.
Now Ellie’s mum and dad, and their friends and family, are determined to give something back to the hospital that gave so much to Ellie during her short time on Earth, while at the same time raising awareness of ARPKD. Naomi has set up a fund for Ellie on JustGiving, and people are spreading awareness through Twitter. They’ve even managed to get a few celebrities involved in tweeting (I believe that’s the technical term…). And a local newspaper has also got wind of Ellie’s cause and now want to write an article about her and the various charity events. What a little star! And now, along with everyone else who would have liked to get to know Ellie, I want to do my bit to get people involved. That’s where you come in!
Please could those of you who have Twitter “tweet” the following link: http://www.justgiving.com/Naomi-Warburton
Obviously none of you know the family, and if we all gave money to every cause out there we’d be broke within minutes, but even so if you think you could perhaps donate a little something that would be amazing! Even if it’s just a pound or two, every penny that the RVI tiny lives charity gets could make a huge difference to a premature or sick baby’s life. (If you do decide to donate, maybe mention that you came from my blog, just so Ellie’s family can keep some kind of overview of where the donations are coming from). The point of this post is really to raise awareness though, not to ask you for money. Which is why all I really want is for the tweeters (twitterers?) among you to at least pass on the link. I know Ellie’s mum will be beyond grateful! I’m not on twitter myself so I thought my blog was the best chance I had to pass on the message. Thank you all!